|my adorable niece when she was born...and today :) she's come a long way and is doing AWESOME!!|
Hey everyone!! If you don't already know what PWS is - let me explain. Children with Prader-Willi Syndrome most likely have physical delays and some type of mental delay...but the most significant issue that PWS children face sometime in their life, is not ever feeling full. This causes many problems because food is then not only a distraction to them, it is an obsession. And if left alone with no supervision or guidance, these children can become dangerously overweight and could actually eat themselves to death.
Parents have to be vigilant constantly, lock up food and cabinets and restrict all meals. For my beautiful niece, this hasn't become an issue yet because she hasn't hit this stage (it could start anytime after four years of age). As if that in itself is not enough of a challenge, these children have a slow metabolism and have to eat LESS calories than typically developing children.
|seriously...can you get any cuter than this?? :)|
|Dr. Miller and my sweet little niece :)|
|my creative sister made Adelaide a watermelon cake for her birthday this year! :)|