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Friday, October 4, 2019

My first Updose!

She didn't see the words on the window until I pointed them out to her.  I told her she's my hero for doing this :) She said she doesn't feel like one...but I disagree!

We've now been doing OIT for one month!  Ella was supposed to go back two weeks ago to get her first up-dose, but since she got sick and had to decrease her dosage, we continued with the smallest dose two more weeks.
Today, she went to CHOP for her first "updose".  They increased her from 1/4 tsp of oat flour mixed with peanut flour to 1/2 tsp.  It's still an extremely small dose - but the important thing is she took it this morning and had zero reaction!  Here are a few words from Ella...

hanging out in our room waiting to dose - passing the time :)
My first month was pretty simple. Most of the days were the same and the first couple of days I had pudding to mix with the dose, but then the pudding started to taste gross, so I switched to applesauce. It kinda had the same outcome as the pudding, except one time I actually had a reaction to the peanuts. But I think that was just because I was sick. I think that, because I was sick for the next 3 days (and she had to take 1/2 the dosage). The applesauce actually started to taste weird, so then I switched to a smoothie thing. And I still am taking that now.  I was a little worried the first couple times I dosed at home, but now I'm not.  The only thing I don't like about dosing is that I have to rest for two hours afterwards, which is always afterschool.  This is the only time I get to be active so I don't like having to rest.

We have been taking the train to and from Philly - so much more pleasant than fighting traffic and looking for parking!
Besides that one reaction (that was quite scary!), the month was uneventful - which is what we want! :) Hopefully the next two weeks are more of the same.  Thanks for following our journey!

God bless,
Laurie and Ella


  1. Thanks for including me on your journey, Ella! I admire you for the strength this takes.